Opt-out from biobanks better respects patients' autonomy
BMJ: British Medical Journal 2008 September 13; 337(7670): 593
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Patients' refusal to consent to storage and use of samples in Swedish biobanks: cross sectional study Johnsson, Linus; Hansson, Mats G.; Eriksson, Stefan; Helgesson, Gert (2008-07-26)
Johnsson, Linus; Helgesson, Gert; Rafnar, Thorunn; Halldorsdottir, Ingibjorg; Chia, Kee-Seng; Eriksson, Stefan; Hansson, Mats G (2010-11)In the debate on biobank regulation, arguments often draw upon findings in surveys on public attitudes. However, surveys on willingness to participate in research may not always predict actual participation rates. We ...
Helgesson, Gert; Johnsson, Linus (2005)Ethical guidelines commonly state that research subjects should have a right to withdraw consent to participate. According to the guidelines we have studied, this right applies also to research on biological samples. ...