Public expectations for return of results ? time to stop being paternalistic?
American Journal of Bioethics 2008 November; 8(11): 46-48
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Fernandez, Conrad V.; Kodish, Eric; Weijer, Charles (2003-12)
Murphy, Juli; Scott, Joan; Kaufman, David; Geller, Gail; LeRoy, Lisa; Hudson, Kathy (2008-11)The National Institutes of Health and other federal health agencies are considering establishing a national biobank to study the roles of genes and environment in human health. A preliminary public engagement study was ...
Attitudes of Research Ethics Board Chairs Toward Disclosure of Research Results to Participants: Results of a National Survey MacNeil, S. Danielle; Fernandez, Conrad V. (2007-09)Background: The offer of aggregate study results to research participants following study completion is increasingly accepted as a means of demonstrating greater respect for participants. The attitudes of research ethics ...