Developing a National Registry for conditions identifiable through newborn screening.
Botkin, Jeffrey R.
Anderson, Rebecca Rae
Genetics in Medicine 2009 March; 11(3): 176-182
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Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots Rothwell, Erin W; Anderson, Rebecca A; Burbank, Matthew J; Goldenberg, Aaron J; Lewis, Michelle Huckaby; Stark, Louisa A; Wong, Bob; Botkin, Jeffrey R (2011-11)We assessed attitudes and opinions of members of newborn blood screening (NBS) advisory committees regarding the storage and secondary research use of residual specimens from NBS.
Lewis, Michelle H; Goldenberg, Aaron; Anderson, Rebecca Rae; Rothwell, Erin; Botkin, Jeffrey (2011-04)After newborn screening has been completed, many states retain residual newborn screening dried blood samples for various purposes, including program evaluation, quality assurance, and biomedical research. The extent to ...