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dc.creatorBonham, Vence L.en
dc.creatorCitrin, Tobyen
dc.creatorModell, Stephen M.en
dc.creatorFranklin, Tené Hamiltonen
dc.creatorBleicher, Esther W.B.en
dc.creatorFleck, Leonard M.en
dc.date.accessioned2011-07-12T18:22:24Zen
dc.date.available2011-07-12T18:22:24Zen
dc.date.created2009-06en
dc.date.issued2009-06en
dc.identifier0361-6878en
dc.identifier10.1215/03616878-2009-009en
dc.identifier.bibliographicCitationJournal of Health Politics, Policy and Law 2009 June; 34(3): 325-359en
dc.identifier.urihttp://hdl.handle.net/10822/514589en
dc.description.abstractEngaging communities of color in the genetics public policy conversation is important for the translation of genetics research into strategies aimed at improving the health of all. Implementing model public participation and consultation processes can be informed by the Communities of Color Genetics Policy Project, which engaged individuals from African American and Latino communities of diverse socioeconomic levels in the process of "rational democratic deliberation" on ethical and policy issues stretching from genome research to privacy and discrimination concerns to public education. The results of the study included the development of a participatory framework based on a combination of the theory of democratic deliberation and the community-based public health model which we describe as "community-based dialogue."en
dc.description.urihttp://dx.doi.org/10.1215/03616878-2009-009en
dc.formatArticleen
dc.languageengen
dc.source325605en
dc.subjectConsultationen
dc.subjectDiscriminationen
dc.subjectEducationen
dc.subjectGeneticsen
dc.subjectGenomeen
dc.subjectHealthen
dc.subjectPrivacyen
dc.subjectPublic Healthen
dc.subjectPublic Participationen
dc.subjectPublic Policyen
dc.subjectResearchen
dc.subject.classificationSocial Control of Science and Technologyen
dc.subject.classificationGenetics, Molecular Biology and Microbiologyen
dc.subject.classificationGenetics and Human Ancestryen
dc.titleCommunity-based dialogue: engaging communities of color in the United States' genetics policy conversation.en
dc.provenanceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National Human Genome Research Instituteen
dc.provenanceDigital citation migrated from OpenText Livelink Discovery Server database named GenETHX to DSpace collection GenETHX hosted by Georgetown Universityen


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