Ethical norms and the international governance of genetic databases and biobanks: findings from an international study
Capron, Alexander Morgan
Elger, Bernice Simone
Kennedy Institute of Ethics Journal 2009 June; 19(2): 101-124
This article highlights major results of a study into the ethical norms and rules governing biobanks. After describing the methodology, the findings regarding four topics are presented: (1) the ownership of human biological samples held in biobanks; (2) the regulation of researchers' use of samples obtained from biobanks; (3) what constitutes "collective consent" to genetic research, and when it is needed; and (4) benefit sharing and remuneration of research participants. The paper then summarizes key lessons to be drawn from the findings and concludes by reflecting on the importance of such empirical research to inform future governance norms and practices.
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Benefit Sharing; Biobanks; Consent; Databases; Empirical Research; Genetic Databases; Genetic Research; Ownership; Regulation; Remuneration; Research; Researchers; Genetics, Molecular Biology and Microbiology; Informed Consent or Human Experimentation; Social Control of Human Experimentation; International and Political Dimensions of Biology and Medicine; Information Science Ethics;
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