Data protection in biobanks--a European challenge for the long-term sustainability of biobanking.
Schulte in den Baumen, Tobias
Law and the human genome review = Revista de derecho y genoma humano / Chair in Law and the Human Genome, BBV Foundation-Provincial Government of Biscay, University of Deusto 2009 Jul-Dec(31): 13-25
The final decoding of the human genome has marked the beginning of a new era of biomedical research and both the European Commission (EC) and the Member States try to facilitate this new research direction. In most European countries biobanks are set up to improve the capacities for research. These new research infrastructures require a specific governance framework to ensure public trust and accountability.
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