Carrier detection and clinical uncertainty: the case for public health ethics
Miller, Fiona Alice
Hayeems, Robin Z.
Robert, Jason Scott
American Journal of Public Health 2009 August; 99(8): 1349-1350
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What is a meaningful result? Disclosing the results of genomic research in autism to research participants. Miller, Fiona Alice; Hayeems, Robin Zoe; Bytautas, Jessica Peace (2010-08)Developments in genomics research have been accompanied by a controversial ethical injunction: that researchers disclose individually relevant research results to research participants. With the explosion of genomic research ...
Hayeems, Robin Zoe; Miller, Fiona Alice; Li, Li; Bytautas, Jessica Peace (2011-07)Ethicists contend that researchers are obliged to report genetic research findings to individual study participants when they are clinically significant, that is, when they are clinically useful or personally meaningful ...
Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening. Miller, F. A.; Hayeems, R. Z.; Bombard, Y.; Little, J.; Carroll, J. C.; Wilson, B.; Allanson, Judith E.; Paynter, M.; Bytautas, J. P.; Christensen, R.; Chakraborty, P. (2009-10)BACKGROUND: Expanded newborn screening generates incidental results, notably carrier results. Yet newborn screening programmes typically restrict parental choice regarding receipt of this non-health serving genetic ...