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dc.creatorKnoppers, Bartha Mariaen
dc.creatorLeroux, T.en
dc.creatorDoucet, H.en
dc.creatorGodard, B.en
dc.creatorLaberge, C.en
dc.creatorStanton-Jean, M.en
dc.creatorFortin, S.en
dc.creatorCousineau, J.en
dc.creatorMonardes, C.en
dc.creatorGirard, N.en
dc.creatorLevesque, L.en
dc.creatorDurand, C.en
dc.creatorFarmer, Y.en
dc.creatorDion-Labrie, M.en
dc.creatorBouthillier, M.-E.en
dc.creatorAvard, Deniseen
dc.date.accessioned2011-07-12T18:22:41Zen
dc.date.available2011-07-12T18:22:41Zen
dc.date.created2010en
dc.date.issued2010en
dc.identifier1662-8063en
dc.identifier10.1159/000279624en
dc.identifier.bibliographicCitationPublic health genomics 2010; 13(4): 224-34en
dc.identifier.urihttp://hdl.handle.net/10822/515139en
dc.description.abstractGenetic information can be used to target interventions that improve health and prevent disease. Indeed, the results of population genomics research could be useful for public health and national pandemic plans. Yet, firm scientific evidence originating from such research and the indicators of the role of health determinants, gene-gene and gene-environment interaction remain to be assessed and validated before being integrated into pandemic plans or public health programmes. It is not clear what is the role of the State in research on the elucidation of the determinants of gene-gene and gene-environment interactions and how, when, and if such data can be accessed and used for such planning. Over a period of 3 years, we sought to address these questions by gathering data and literature relevant to research in public health genomics, preparing issues papers and, finally, consulting with stakeholders on a provisional 'points to consider' document at various times. Examining in turn the issues of privacy, State powers, stakeholder perceptions, and public participation, we propose in this article, for each of these themes, a series of recommendations aiming to provide guidance on the role of the State in the use of genomic information for public health research, prevention and planning.en
dc.description.urihttp://dx.doi.org/10.1159/000279624en
dc.formatArticleen
dc.languageengen
dc.source328664en
dc.subjectGenomicsen
dc.subjectHealthen
dc.subjectPublic Healthen
dc.subjectResearchen
dc.subject.classificationConfidentialityen
dc.subject.classificationHealth Careen
dc.subject.classificationGenetics, Molecular Biology and Microbiologyen
dc.titleFraming genomics, public health research and policy: points to consider.en
dc.provenanceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National Human Genome Research Instituteen
dc.provenanceDigital citation migrated from OpenText Livelink Discovery Server database named GenETHX to DSpace collection GenETHX hosted by Georgetown Universityen


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