Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?
Public health genomics 2010; 13(6): 345-52
Many studies have explored public perspectives on when and how to provide informed consent to biobank research and when to get feedback on research results. Little has been done to explore overarching trends in these studies.
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Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent Hoeyer, Klaus; Lynoe, Niels (2006)In this article we explore the contribution from social anthropology to the medical ethical debates about the use of informed consent in research, based on blood samples and other forms of tissue. The article springs from ...