How to handle genetic information: a comparison of attitudes among patients and the general population.
Public health genomics 2010; 13(7-8): 396-405
So far there are no studies comparing the attitudes of patients with hereditary conditions to the attitudes of the general public on how to handle genetic risk information which mutation carriers refuse to disclose to relevant family members. The purpose of the present study was to investigate whether such patients and members of the general public want to be informed about the existence of hereditary conditions within their family, and under which conditions they want healthcare providers to breach confidentiality.
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Attitudes toward Genetic Testing among the General Population and Relatives of Patients with a Severe Genetic Disease: A Survey from Finland Hietala, Marja; Hakonen, Anu; Aro, Arja R.; Niemela, Pirkko (1995-06)