. = Deficiencias en las Hojas de Información de Estudios Genómicos.
Sáenz de Tejada López, M
Valle Mansilla, J I
Cuadernos de bioética : revista oficial de la Asociación Española de Bioética y Ética Médica 2010 Jan-Apr; 21(71): 95-108
whenever biological samples are requested for genomic research consent from donors is always needed. in this process, appropriate information offered to participants is essential. the aim of this study is to assess the information included in consent forms from genomic studies.
Deficiencies in consent forms for genomic research
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Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain Ruiz-Canela, M.; Valle-Mansilla, J.I.; Sulmasy, D.P. (2009-04)INTRODUCTION: The use of human samples in genomic research has increased ethical debate about informed consent (IC) requirements and the information that subjects should receive regarding the results of the research. ...
Valle-Mansilla, J Ignacio; Ruiz-Canela, Miguel; Sulmasy, Daniel P (2010-08)This international self-administered survey describes the attitudes of 279 patients, who had previously donated samples, regarding informed consent for future genomic research on donated tissue and explores factors associated ...