Not without my permission: parents' willingness to permit use of newborn screening samples for research.
Public Health Genomics 2010 February; 13(3): 125-130
Showing items related by title, author, creator and subject.
Not Without My Permission: Parents' Willingness to Permit Use of Newborn Screening Samples for Research Tarini, B.A.; Goldenberg, A.; Singer, D.; Clark, S.J.; Butchart, A.; Davis, M.M. (2010)BACKGROUND: State newborn screening (NBS) programs are considering the storage and use of NBS blood samples for research. However, no systematic assessment of parents' attitudes exists. METHODS: We conducted an Internet-based ...
Lewis, Michelle H; Goldenberg, Aaron; Anderson, Rebecca Rae; Rothwell, Erin; Botkin, Jeffrey (2011-04)After newborn screening has been completed, many states retain residual newborn screening dried blood samples for various purposes, including program evaluation, quality assurance, and biomedical research. The extent to ...
C. S. Mott Children's Hospital National Poll on Children's Health: Children in Research: Many Parents Willing if Risk of Harm Is Small Davis, Matthew; Clark, Sarah J.; Singer, Dinane C.; Butchart, Amy (University of Michigan. C. S. Mott Children's Hospital. University of Michigan. Department of Pediatrics and Communicable Diseases. University of Michigan. Child Health Evaluation and Research (CHEAR) Unit, 2008-05-08)