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dc.creatorAndermann, Anne, 1972-en
dc.creatorBlancquaert, Ingeborgen
dc.creatorDéry, Véroniqueen
dc.date.accessioned2011-07-12T18:22:49Zen
dc.date.available2011-07-12T18:22:49Zen
dc.date.created2010-04en
dc.date.issued2010-04en
dc.identifier1758-1060en
dc.identifier10.1258/jhsrp.2009.009084en
dc.identifier.bibliographicCitationJournal of health services research & policy 2010 Apr ; 15(2): 90-7en
dc.identifier.urihttp://hdl.handle.net/10822/515474en
dc.description.abstractOBJECTIVE: Policy-makers are faced with increasing pressures from a range of different stakeholders to introduce or expand genetic screening programmes. A shared understanding is therefore needed of the many factors influencing these complex policy decisions. Our aim was to develop a theoretical framework that highlights the multiple components and influences involved in genetic screening and the policy-making process. METHODS: As part of a larger research programme, existing policy frameworks relating to genetic screening were identified through a review of the literature. Major themes were identified and synthesized into an overarching framework, which was further refined through discussions with key informants. RESULTS: The framework consists of three parts. The first part conceptualizes genetic screening as an integrated public health programme. The second part describes the policy-making process at each stage in the life cycle of the programme. The third part depicts the broader context within which policy-making occurs. CONCLUSION: This framework can support policy-makers by fostering a common understanding and facilitating dialogue with stakeholders. The framework has also been used as the conceptual foundation for the development of a more elaborate decision-guide.en
dc.description.urihttp://dx.doi.org/10.1258/jhsrp.2009.009084en
dc.formatArticleen
dc.languageengen
dc.source331635en
dc.subjectGenetic Screeningen
dc.subjectHealthen
dc.subjectLifeen
dc.subjectLiteratureen
dc.subjectMethodsen
dc.subjectPublic Healthen
dc.subjectResearchen
dc.subjectReviewen
dc.subjectStakeholdersen
dc.subject.classificationHealth Careen
dc.subject.classificationGenetic Screening / Genetic Testingen
dc.titleGenetic screening: a conceptual framework for programmes and policy-making.en
dc.provenanceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National Human Genome Research Instituteen
dc.provenanceDigital citation migrated from OpenText Livelink Discovery Server database named GenETHX to DSpace collection GenETHX hosted by Georgetown Universityen


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