National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue.
Science, Technology, and Human Values 2010 May; 35(3): 330-355
The development of genomics has dramatically expanded the scope of genetic research, and collections of genetic biosamples have proliferated in countries with active genomics research programs. In this essay, we consider a particular kind of collection, national biobanks. National biobanks are often presented by advocates as an economic "resource" that will be used by both basic researchers and academic biologists, as well as by pharmaceutical diagnostic and clinical genomics companies. Although national biobanks have been the subject of intense interest in recent social science literature, most prior work on this topic focuses either on bioethical issues related to biobanks, such as the question of informed consent, or on the possibilities for scientific citizenship that they make possible. We emphasize, by contrast, the economic aspect of biobanks, focusing specifically on the way in which national biobanks create biovalue. Our emphasis on the economic aspect of biobanks allows us to recognize the importance of what we call clinical labor-that is, the regularized, embodied work that members of the national population are expected to perform in their role as biobank participants-in the creation of biovalue through biobanks. Moreover, it allows us to understand how the technical way in which national biobanks link clinical labor to databases alters both medical and popular understandings of risk for common diseases and conditions.
Permanent LinkFind Full Text at Georgetown University Library
Full Text from Publisher
Showing items related by title, author, creator and subject.
Arguments in the cases arising under the Railway Labor Act and the National Labor Relations Act before the Supreme Court of the United States, February 8-11, 1937. The Virginian Railway Co. v. System Federation No. 40; the Associated Press v. National Labor Relations Board; Washington, Virginia and Maryland Coach Co. v. National Labor Relations Board; National Labor Relations Board v. Jones & Laughlin Steel Corp.; National Labor Relations Board v. Fruehauf Trailer Co.; National Labor Relations Board v. Friedman-Harry Marks Clothing Co., Inc United States. Supreme Court (Washington, Govt. print. off., 1937, 1937)
HIV Prevalence, Risk Behaviors, Health Care Use, and Mental Health Status of Transgender Persons: Implications for Public Health Intervention Clements-Nolle, Kristen; Marx, Rani; Guzman, Robert; Katz, Mitchell (2001-06)