Genomic research and wide data sharing: views of prospective participants.
Trinidad, Susan Brown
Fullerton, Stephanie M
Bares, Julie M
Jarvik, Gail P
Larson, Eric B
Genetics in medicine : official journal of the American College of Medical Genetics 2010 Aug; 12(8): 486-95
Sharing study data within the research community generates tension between two important goods: promoting scientific goals and protecting the privacy interests of study participants. This study was designed to explore the perceptions, beliefs, and attitudes of research participants and possible future participants regarding genome-wide association studies and repository-based research.
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