Patients' attitudes to informed consent for genomic research with donated samples.
Valle-Mansilla, J Ignacio
Sulmasy, Daniel P
Cancer investigation 2010 Aug; 28(7): 726-34
This international self-administered survey describes the attitudes of 279 patients, who had previously donated samples, regarding informed consent for future genomic research on donated tissue and explores factors associated with these attitudes. Most of the patients supported a fairly broad consent unless research was industry-sponsored. In multivariate analysis, support for broad informed consent was highest among neurology patients and patients who had already given a broad informed consent. There was a trend for Spaniards to be more supportive for a broad informed consent than their US counterparts. Exploring these opinions may help improve consent and explain why some patients reject broader forms of consent.
Permanent LinkFind Full Text at Georgetown University Library
Full Text from Publisher
Showing items related by title, author, creator and subject.
Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain Ruiz-Canela, M.; Valle-Mansilla, J.I.; Sulmasy, D.P. (2009-04)INTRODUCTION: The use of human samples in genomic research has increased ethical debate about informed consent (IC) requirements and the information that subjects should receive regarding the results of the research. ...
Informed Consent and Approval by Institutional Review Boards in Published Reports on Clinical Trials Ruiz-Canela, Miguel; Martinez-Gonzalez, Miguel Angel; Gomez-Garcia, Enrique; Fernandez-Crehuet, Joaquin (1999-04-08)