Understanding preferences for disclosure of individual biomarker results among participants in a longitudinal birth cohort.
Wilson, Stephen E
Baker, Erin R
Leonard, Anthony C
Eckman, Mark H
Lanphear, Bruce P
Journal of medical ethics 2010 Dec; 36(12): 736-40
To describe the preferences for disclosure of individual biomarker results among mothers participating in a longitudinal birth cohort.
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Feedback of Individual Genetic Results to Research Participants: In Favor of a Qualified Disclosure Policy Bredenoord, Annelien L; Onland-Moret, N Charlotte; Van Delden, Johannes J M (2011-08)This article discusses whether and when researchers have a moral obligation to feedback individual genetic research results. This unsettled debate has rapidly gained in urgency in view of the emergence of biobanks and the ...