Genetic research and biobanks.
Methods in molecular biology (Clifton, N.J.) 2011; 675: 1-37
Human biobanks, and genetic research databases, as referred to by the Organisation for Economic Co-operation and Development (OECD), are essential tools for modern biomedical research. Biobanks may consist in collections created in clinical diagnosis (such as pathology tissue samples in hospitals) or collections created for large-scale longitudinal research (such as the UK Biobank). Human tissue collections are regulated by a patchwork of national laws. However, there is an increasing international uniformity in national privacy laws based on 1980s OECD standards. There are similar uniform standards developing in national research ethics guidelines. As biobanks develop collaborations and linkages, international harmonisation of legislation and human research regulation will be required across jurisdictions. It is essential that international public trust is maintained in biobanking research.
Permanent LinkFind Full Text at Georgetown University Library
Full Text from Publisher
Showing items related by title, author, creator and subject.
Human genetic research databases and biobanks: towards uniform terminology and Australian best practice. Chalmers, Don; Nicol, Dianne (2008-02)
Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research Hoeyer, Klaus; Olofsson, Bert-Ove; Mjorndal, Tom; Lynoe, Niels (2004)
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Kettis-Lindblad, Åsa; Ring, Lena; Viberth, Eva; Hansson, Mats G. (2006-08)