Guiding policy decisions for genetic screening: developing a systematic and transparent approach.
Andermann, Anne, 1972-
Public health genomics 2011; 14(1): 9-16
With the ever-widening gap between what is technologically possible and services available, jurisdictions around the world are faced with complex decisions regarding the introduction and expansion of genetic screening programs. A series of literature reviews and consultations with stakeholders and experts led to the development of a decision support guide for genetic screening policy-making. This involved establishing a preliminary list of core criteria synthesized from the growing literature on genetic screening, which was then transformed through a series of consultations into a more elaborate decision guide. Although certain perennial challenges in genetic screening policy-making remain, the decision support guide aims to promote a fair and evidence-informed process that makes explicit the ethical dilemmas often inherent to such policy decisions.
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Revisiting Wilson and Jungner in the genomic age: a review of screening criteria over the past 40 years. Andermann, Anne, 1972-; Blancquaert, Ingeborg; Beauchamp, Sylvie; Déry, Véronique (2008-04)
Andermann, Anne, 1972-; Blancquaert, Ingeborg; Déry, Véronique (2010-04)OBJECTIVE: Policy-makers are faced with increasing pressures from a range of different stakeholders to introduce or expand genetic screening programmes. A shared understanding is therefore needed of the many factors ...
Blancquaert, Ingeborg (2001-05)