Risks, benefits, solidarity: a framework for the participation of children in genetic biobank research.
The Journal of pediatrics 2011 May; 158(5): 842-8
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Hens, Kristien; Nys, Herman; Cassiman, Jean-Jacques; Dierickx, Kris (2011-03)The combination of the issue of return of individual genetic results/incidental findings and paediatric biobanks is not much discussed in ethical literature. The traditional arguments pro and con return of such findings ...
Hens, Kristien; Cassiman, Jean-Jacques; Nys, Herman; Dierickx, Kris (2011-07)The use of stored tissue samples from children for genetic research raises specific ethical questions that are not all analogous to those raised when adult participants are concerned. These include issues with regard to ...
The use of diagnostic collections of DNA for research: interviews at the eight Belgian centers for human genetics. Hens, Kristien; Nys, Herman; Cassiman, Jean-Jacques; Dierickx, Kris (2010-09)The attitudes towards the reuse for research of biological samples that were gathered in a diagnostics context have changed over the last years. A few decades ago, people would not hesitate to use such samples without ...