Protecting the Privacy of Family Members in Survey and Pedigree Research
Botkin, Jeffrey R.
JAMA: The Journal of the American Medical Association 2001 January 10; 285(2): 207-211
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Privacy and Confidentiality in the Publication of Pedigrees: A Survey of Investigators and Biomedical Journals Botkin, Jeffrey R.; McMahon, William M.; Smith, Ken R.; Nash, Jean E. (1998-06-10)CONTEXT: Pedigree diagrams efficiently communicate family information to genetics investigators; however, the publication of pedigrees poses a risk to the privacy and confidentiality of individuals depicted in the diagrams. Two ...