Community participation and representation in genetic studies: testing the application of fundamental ethical principles
St. Thomas Law Review 2001 Summer; 13(4): 935-943
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Genetic Testing is Different [reviews of GENETIC TESTING FOR ALZHEIMER DISEASE: ETHICAL AND CLINICAL ISSUES, by Stephen G. Post and Peter J. Whitehouse and PROMOTING SAFE AND EFFECTIVE GENETIC TESTING IN THE UNITED STATES: PRINCIPLES AND RECOMMENDATIONS, by Task Force on Genetic Testing, NIH-DOE Working Group on Ethical, Legal, and Social Implications of Human Genome Research] Clayton, Ellen Wright (2001-04)
Ethical Issues in Community-Based Participatory Research: Balancing Rigorous Research With Community Participation in Community Intervention Studies Buchanan, David Ross; Miller, Franklin G; Wallerstein, Nina (2007-06)PROBLEM: Concerns have been raised that community participation might compromise scientific rigor in community-based participatory research (CBPR). PURPOSE: The purpose of this paper is to identify potential sources of ...