Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information -- commentary and author's reply
Journal of Medical Ethics 2003 April; 29(2): 80-83
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Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information Hallowell, N.; Foster, C.; Eeles, R.; Ardern-Jones, Audrey; Murday, V.; Watson, M. (2003-04)Using data obtained during a retrospective interview study of 30 women who had undergone genetic testing-BRCA1/2 mutation searching- this paper describes how women, previously diagnosed with breast/ovarian cancer, perceive ...
Clarke, Susan; Butler, Kate; Esplen, Mary Jane (2008-08)
The micropolitics of responsibility vis-à-vis autonomy: parental accounts of childhood genetic testing and (non)disclosure. Arribas-Ayllon, Michael; Sarangi, Srikant; Clarke, Angus (2008-03)