Screening for fragile X syndrome: parent attitudes and perspectives
Sparkman, Karen L.
Bailey, Donald B.
Genetics in Medicine 2003 September-October; 5(5): 378-384
Showing items related by title, author, creator and subject.
Ethical, legal, and social concerns about expanded newborn screening: fragile X syndrome as a prototype for emerging issues Bailey, Donald B.; Skinner, Debra; Davis, Arlene M.; Whitmarsh, Ian; Powell, Cynthia (2008-03)
Bailey, Donald B.; Skinner, Debra; Warren, Steven F. (2005-11)A fundamental tenet of newborn screening is that screening should lead to a proven benefit for the infant. The standard is usually construed as medical benefit that significantly improves a child's health. Screening for ...
Skinner, Debra; Choudhury, Summer; Sideris, John; Guarda, Sonia; Buansi, Allen; Roche, Myra; Powell, Cynthia; Bailey, Donald B Jr. (2011-06)The goal of this study was to document rates of parental consent in a pilot study of newborn screening for FMR1 gene expansions, examine demographic characteristics of mothers who consented or declined, describe the reasons ...