Genetic data and medical confidentiality
Flanagan, William F.
Health Law Journal 1995; 3: 269-288
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Confidentiality Laws and Secrecy in Medical Research: Improving Public Access to Data on Drug Safety. Concealing Clinical Trial Data From Public Scrutiny Has Implications for Americans' Health Kesselheim, Aaron S.; Mello, Michelle M. (2007-03)
Caught you: threats to confidentiality due to the public release of large-scale genetic data sets. Wjst, Matthias (2010-12-29)Large-scale genetic data sets are frequently shared with other research groups and even released on the Internet to allow for secondary analysis. Study participants are usually not informed about such data sharing because ...