Privacy and Progress in Whole Genome Sequencing
Privacy and Progress in Whole Genome Sequencing concludes that to realize the enormous promise that whole genome sequencing holds for advancing clinical care and the greater public good, individual interests in privacy must be respected and secured. As the scientific community works to bring the cost of whole genome sequencing down from millions per test to less than the cost of many standard diagnostic tests today, the Commission recognizes that whole genome sequencing and its increased use in research and the clinic could yield major advances in health care. However it could also raise ethical dilemmas. The Commission offers a dozen timely proactive recommendations that will help craft policies that are flexible enough to ensure progress and responsive enough to protect privacy. Retrieved February 25, 2014 http://bioethics.gov/node/764
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Callier, Shawneequa (Kennedy Institute of Ethics, 2014-11-21)In this talk, Shawneequa Callier weighs the ethical and legal responsibilities for researchers in relaying unanticipated incidental findings from whole genome sequencing to trial participants. Shawneequa Callier is an ...
Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small. Sharp, Richard R (2011-03)As we look to a time when whole-genome sequencing is integrated into patient care, it is possible to anticipate a number of ethical challenges that will need to be addressed. The most intractable of these concern informed ...