Privacy and Genetic Information
Lubs, Herbert A
In: Hilton, Bruce, et al., eds. Ethical Issues in Human Genetics: Genetic Counseling and the Use of Genetic Knowledge. New York
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A Bill to Define the Circumstances under which DNA Samples may be Collected, Stored, and Analyzed, and Genetic Information May be Collected, Stored, Analyzed, and Disclosed, to Define the Rights of Individuals and Persons with Respect to Genetic Information, to Define the Responsibilities of Persons with Respect to Genetic Information, to Protect Individuals and Families from Genetic Discrimination, to Establish Uniform Rules that Protect Individual Genetic Privacy, and to Establish Effective Mechanisms to Enforce the Rights and Responsibilities Established under this Act United States. Congress. Senate (1997-03-11)
GENETIC DISORDERS SOURCEBOOK: BASIC CONSUMER HEALTH INFORMATION ABOUT HEREDITARY DISORDERS, INCLUDING DISORDERS RESULTING FROM ABNORMALITIES IN SPECIFIC GENES, SUCH AS HEMOPHILIA, SICKLE CELL DISEASE, AND CYSTIC FIBROSIS, CHROMOSOMAL DISORDERS, SUCH AS DOWN SYNDROME, FRAGILE X SYNDROME, AND KLINEFELTER SYNDROME, AND COMPLEX DISORDERS WITH ENVIRONMENTAL AND GENETIC COMPONENTS, SUCH AS ALZHEIMER DISEASE, CANCER, HEART DISEASE, AND OBESITY, ALONG WITH INFORMATION ABOUT THE HUMAN GENOME PROJECT, GENETIC TESTING AND PRIVACY CONCERNS, THE SPECIAL NEEDS OF CHILDREN WITH GENETIC DISORDERS, CURRENT RESEARCH INITIATIVES, A GLOSSARY OF TERMS, AND A DIRECTORY OF RESOURCES FOR FURTHER HELP AND INFORMATION Judd, Sandra J., ed. (2010)
An act relating to genetic testing privacy; amending title 39, Idaho Code, by the addition of a new chapter 83, title 39, Idaho Code, to provide a short title, to define terms, to set forth restrictions regarding genetic testing information applicable to employers, to provide for a private right of action and to provide for enforcement; and amending section 41-1313, Idaho Code, to prohibit insurers from discriminating on the basis of a genetic test or private genetic information for certain purposes Idaho. Laws, statutes, etc. (2006-03-31)