David the Bubble Boy' and the Boundaries of the Human
Lawrence, Raymond J.
JAMA. 1985 Jan 4; 253(1): 74-76.
Lawrence is troubled by the fact that there has been little public discussion of the ethical and humanitarian issues raised by the life of David, the boy with severe combined immune deficiency syndrome who lived in a sterile bubble chamber at St. Luke's Episcopal/Texas Children's Hospital until his death at the age of 12. As Director of Clinical Pastoral Education at the hospital during the first four years of David's life, Lawrence had contact with the boy and with the medical team caring for him. He describes the role of the medical team in encouraging David's conception and planning his life in the bubble, and contends that the physicians and scientists who designed the project were too isolated in the technocratic milieu of current medical practice to appreciate the dehumanizing aspects of what they were doing. (KIE abstract)
Attitudes; Biomedical Technologies; Caring; Children; Communication; Death; Dehumanization; Education; Human Characteristics; Human Experimentation; Humanities; Immunologic Deficiency Syndromes; Interdisciplinary Communication; Investigators; Life; Minors; Normality; Pastoral Care; Patient Care; Physician Patient Relationship; Physicians; Psychological Stress; Quality of Life; Research; Therapeutic Research;
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