Survival at What Cost? Origins and Effects of the Modern Controversy on Treating Severely Handicapped Newborns
Reiser, Stanley J.
Journal of Health Politics, Policy and Law. 1986 Summer; 11(2): 199-213.
Reiser traces the origins of current controversies in the care of handicapped newborns to the development of life-prolonging technologies, increased participation by patients and their families in decision making, greater federal involvement in determining medical policy, and public debate over prenatal diagnosis and abortion. He outlines the history of the Department of Health and Human Services' "Baby Doe" regulations, and the legal battles over the regulations and over the care of New York's "Baby Jane Doe." While acknowledging the government's legitimate interest in the fate of such infants, Reiser criticizes its current regulatory approach as intrusive and rigid. He concludes that, while the government, hospital ethics committees, physicians, and parents of seriously ill newborns should all participate in decision making, the parents bear the ultimate responsibility for these children and are entitled to society's financial assistance should they survive. (KIE abstract)
Abortion; Allowing to Die; Attitudes; Children; Clinical Ethics; Clinical Ethics Committees; Congenital Disorders; Decision Making; Diagnosis; Economics; Ethics; Ethics Committees; Federal Government; Government; Government Regulation; Health; Hospital Ethics Committees; Infants; Intensive Care Units; Judicial Action; Life; Moral Policy; Newborns; Parents; Patient Advocacy; Patient Care; Patients; Physicians; Prenatal Diagnosis; Public Policy; Quality of Life; Regulation; Selection for Treatment; Withholding Treatment;
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