Confidentiality: The Protection of Personal Data in Epidemiological and Clinical Research Trials
McCarthy, Charles R.
Porter, Joan P.
Law, Medicine and Health Care. 1991 Fall-Winter; 19(3-4): 238-241.
The consultation for the Development of International Guidelines for Epidemiological Research and Ethical Review Procedures assembled in Geneva in November 1990 offered basic principles that should apply to epidemiological and clinical research. The principles provide the basis for discussion here.
Behavioral Research; Biomedical Research; Community Consent; Confidentiality; Clinical Research; Consent; Consultation; Disclosure; Epidemiology; Ethical Review; Guidelines; Human Experimentation; Informed Consent; Organizations; Public Participation; Research; Research Design; Research Subjects; Review; Stigmatization; Third Party Consent; Truth Disclosure;
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Guidelines for the Presentation of Research Plans and Protocols, Data Documentation and Data Storage in Clinical and Clinical-Epidemiological Research Nexo, Ebba; Brydensholt, Hans Henrik (Danish Medical Research CouncilDanish Committee on Scientific Dishonesty, 1997-02)