The Bioethics Committee in Long-Term Care Institutions for the Developmentally Disabled
Beltran, Joseph E.
HEC (HealthCare Ethics Committee) Forum. 1992; 4(3): 163-173.
Family members of those who reside in the developmental centers should have a way to document their preferences concerning the future care and treatment of their loved ones. This is especially important for aging parents. They seek some assurance that their children will be cared for according to their mutually agreed upon values. The documentation of the family's values is commensurate with the spirit of the PSDA [Patient Self-Determination Act 1990]. If these recommendations were implemented, a more consistent way to reach decisions to extend or to limit life-sustaining treatment for developmentally disabled residents would be achieved. After all, it is not only important to protect the clients but to recognize their legal right to accept or refuse medical treatment. In most cases this would be accomplished without judicial review, but would require that ethics committees carefully review all decisions to forgo treatment.
Advance Directives; Aging; Allowing to Die; Bioethics; Children; Clinical Ethics; Clinical Ethics Committees; Consent; Decision Making; Ethics; Ethics Committees; Family Members; Government; Legal Aspects; Legal Rights; Life; Long-Term Care; Parents; Patient Advocacy; Patient Care; Public Policy; Quality of Life; Residential Facilities; Resuscitation; Resuscitation Orders; Review; Rights; Third Party Consent; Treatment Refusal; Value of Life; Values;
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