What Do I Want From Health Research and Researchers When I Am a Patient?
BMJ (British Medical Journal). 1995 May 20; 310(6990): 1315-1318.
I have attempted to adopt the perspective of a patient -- albeit one with a rather atypical background -- to explore what I want from health research and researchers. This has left me with the impression that health researchers could serve the interests of the public more effectively in a variety of ways, and that they would be helped to do so by greater lay involvement in planning and promoting health research.
Showing items related by title, author, creator and subject.
Chalmers, Iain (1995-05-20)
What to Do When a Competent ICU Patient Does Not Want to Live Anymore but Is Dependent on Life-Sustaining Treatment? Experience From the Netherlands van der Hoven, Ben; de Groot, Yorick J; Thijsse, Wilhelmina J; Kompanje, Erwin J O (2010-12)If patients on the intensive care unit (ICU) are awake and life-sustaining treatment is suspended because of the patients' request, because of recovering from the disease, or because independence from organ function ...
When "No" Might Not Quite Mean "No"; the Importance of Informed and Meaningful Non-Consent: Results From a Survey of Individuals Refusing Participation in a Health-Related Research Project Williams, Brian; Irvine, Linda; McGinnis, Alison R.; McMurdo, Marion E.T.; Crombie, Iain K. (2007)