Identifying People's Genes: Ethical Aspects of DNA Sampling in Populations
Baird, Patricia A.
Perspectives in Biology and Medicine. 1995 Winter; 38(2): 159-166.
Autonomy; Coercion; Confidentiality; Consent; Disclosure; DNA; DNA Data Banks; DNA Fingerprinting; Data Banks; Discrimination; Employment; Family Members; Future Generations; Genes; Genetic Predisposition; Genetic Research; Health; Health Insurance; Informed Consent; Insurance; Legal Aspects; Privacy; Research; Rights; Risk; Self Concept; Social Discrimination; Stigmatization;
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Sampling and Ethical Issues in a Multicenter Study on Health of People With Intellectual Disabilities Veenstra, Marja Y; Walsh, Patricia N; van Schrojenstein Lantman-de Valk, Henny M J; Haveman, Meindert J; Linehan, Christine; Kerr, Mike P; Weber, Germain; Salvador-Carulla, Luis; Carmen-Cara, Alexandra; Azema, Bernard; Buono, Serafino; Germanavicius, Arunas; Tossebro, Jan; Maatta, Tuomo; van Hove, Geert; Moravec, Dasa (2010-10)To study health inequalities in persons with intellectual disabilities, representative and unbiased samples are needed. Little is known about sample recruitment in this vulnerable group. This study aimed to determine ...