"Decoding" Informed Consent: Insights From Women Regarding Breast Cancer Susceptibility Testing
Bernhardt, Barbara A.
Holtzman, Neil A.
Hastings Center Report. 1997 Mar-Apr; 27(2): 28-33.
Cancer susceptibility testing is likely to become routine in medical practice, despite many limitations and unanswered questions. These uncertainties greatly complicate the process of informed consent, creating an excellent opportunity to reconsider exactly how it should be conducted. Research with women's reactions to the availability of genetic susceptibility testing for breast cancer dramatically underscores that informed consent ought to be highly individualized, taking care to discern what patients believe about the disease and its causes and what role they want their physician to play.
Attitudes; Autonomy; Breast Cancer; Cancer; Communication; Comprehension; Counseling; Consent; Decision Making; Directive Counseling; Disclosure; Disease; Education; Females; Genetic Counseling; Genetic Predisposition; Genetic Screening; Informed Consent; Motivation; Patient Advocacy; Patient Education; Patients; Physician Patient Relationship; Physician's Role; Qualitative Research; Research; Risk; Survey; Trust; Uncertainty; Values;
Showing items related by title, author, creator and subject.