The Ethical Arguments Concerning the Artificial Ventilation of Patients With Motor Neurone Disease
Kent, Michele Anne
Nursing Ethics. 1996 Dec; 3(4): 317-328.
This paper focuses on the ethical dilemmas created by advanced technology that would allow patients with motor neurone disease to be sustained by artificial ventilation. The author attempts to support the patient's right to informed choice, arguing from the perspective of autonomy as a first order principle. The counter arguments of caregiver burden and financial restraints are analysed. In the UK, where active euthanasia is not legalized, the dilemma of commencing ventilation is seen to be outweighed by the problems of withdrawing this treatment. The lack of accurate data and protocols that would clarify the current situation is emphasized and the conclusion takes the form of a recommendation for further research.
Active Euthanasia; Advance Directives; Allowing to Die; Autonomy; Central Nervous System Diseases; Chronically Ill; Consent; Decision Making; Disclosure; Disease; Emergency Care; Euthanasia; Family Members; Health; Health Insurance; Home Care; Informed Consent; Insurance; International Aspects; Life; Paternalism; Patient Participation; Patients; Physicians; Prolongation of Life; Quality of Life; Research; Resource Allocation; Selection for Treatment; Socioeconomic Factors; Technology; Treatment Refusal; Ventilators; Withholding Treatment;
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