Ethical Issues in Genetic Research: Disclosure and Informed Consent
Reilly, Philip R.
Boshar, Mark F.
Holtzman, Steven H.
Nature Genetics. 1997 Jan; 15(1): 16-20.
As research to correlate genetic status with predisposition to disease has accelerated, so has the concern that participation in such studies creates the risk of genetic discrimination and emotional distress. There is a need to broaden disclosure during the consent process to ensure that potential subjects understand these risks and other issues and to address them in the consent form. We describe the broad approach that we have taken in regard to disclosure and consent in gene mapping studies.
Confidentiality; Consent Forms; Consent; Disclosure; Disease; DNA; DNA Data Banks; Data Banks; Discrimination; Ethics; Ethics Committees; Family Members; Federal Government; Forms; Genetic Discrimination; Genetic Information; Genetic Research; Genome; Genome Mapping; Government; Government Regulation; Guidelines; Genetic Screening; Incidental Findings; Industry; Informed Consent; Insurance; Investigators; Privacy; Property Rights; Property; Regulation; Research; Research Ethics; Research Ethics Committees; Rights; Risk; Social Discrimination;
Showing items related by title, author, creator and subject.