Trust: The Fragile Foundation of Contemporary Biomedical Research
Creator
Kass, Nancy E.
Sugarman, Jeremy
Faden, Ruth
Schoch-Spana, Monica
Bibliographic Citation
Hastings Center Report. 1996 Sep-Oct; 26(5): 25-29.
Abstract
It is widely assumed that informing prospective subjects about the risks and possible benefits of research not only protects their rights as autonomous decisionmakers, but also empowers them to protect their own interests. Yet interviews with patient-subjects conducted under the auspices of the Advisory Committee on Human Radiation Experiments suggest this is not always the case. Patient-subjects often trust their physician to guide them through decisions on research participation. Clinicians, investigators, and IRBs must assure that such trust is not misplaced.
Date
1996-09Subject
Advisory Committees; Altruism; Attitudes; Biomedical Research; Comprehension; Consent; Disclosure; Empirical Research; Ethics; Ethics Committees; Forms; Goals; Hospitals; Human Experimentation; Informed Consent; Interviews; Investigational Therapies; Investigator Subject Relationship; Investigators; Motivation; Paternalism; Patient Advocacy; Patients; Physicians; Radiation; Research; Research Ethics; Research Ethics Committees; Research Subjects; Rights; Risks and Benefits; Therapeutic Research; Trust;
Collections
Metadata
Show full item recordRelated items
Showing items related by title, author, creator and subject.
-
Controversy and Quality Improvement: Lingering Questions About Ethics, Oversight, and Patient Safety Research
Kass, Nancy; Pronovost, Peter J.; Sugarman, Jeremy; Goeschel, Christine A.; Lubomski, Lisa H.; Faden, Ruth (2008-06) -
What Patients Say About Medical Research
Sugarman, Jeremy; Kass, Nancy E.; Goodman, Steven N.; Perentesis, Patricia; Fernandes, Praveen; Faden, Ruth R. (1998-07) -
The Influence of HIV Serostatus on Physicians' Clinical Decisions
Kass, Nancy E.; Sugarman, Jeremy; Goodman, Steven N.; Faden, Ruth (1994)