Trust: The Fragile Foundation of Contemporary Biomedical Research
Kass, Nancy E.
Hastings Center Report. 1996 Sep-Oct; 26(5): 25-29.
It is widely assumed that informing prospective subjects about the risks and possible benefits of research not only protects their rights as autonomous decisionmakers, but also empowers them to protect their own interests. Yet interviews with patient-subjects conducted under the auspices of the Advisory Committee on Human Radiation Experiments suggest this is not always the case. Patient-subjects often trust their physician to guide them through decisions on research participation. Clinicians, investigators, and IRBs must assure that such trust is not misplaced.
Advisory Committees; Altruism; Attitudes; Biomedical Research; Comprehension; Consent; Disclosure; Empirical Research; Ethics; Ethics Committees; Forms; Goals; Hospitals; Human Experimentation; Informed Consent; Interviews; Investigational Therapies; Investigator Subject Relationship; Investigators; Motivation; Paternalism; Patient Advocacy; Patients; Physicians; Radiation; Research; Research Ethics; Research Ethics Committees; Research Subjects; Rights; Risks and Benefits; Therapeutic Research; Trust;
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