Home Ventilation of a Child With Motor and Sensory Neuropathy
Ward, Trudy A.
BMJ (British Medical Journal). 1996 Jul 20; 313(7050): 153-155.
A paediatrician describes a young child who was eventually diagnosed as having autosomal recessive hereditary motor and sensory neuropathy type III and the uncertainties surrounding the decision to support the child at home on domiciliary ventilation. The child's mother gives her reaction to the decision, and we also invited comments from a public health physician, a nurse, and an intensive care paediatrician.
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