The Ethical, Legal, and Social Implications Research Program at the National Human Genome Research Institute
Meslin, Eric M.
Thomson, Elizabeth J.
Boyer, Joy T.
Kennedy Institute of Ethics Journal. 1997 Sep; 7(3): 291-298.
Organizers of the Human Genome Project (HGP) understood from the beginning that the scientific activities of mapping and sequencing the human genome would raise ethical, legal, and social issues that would require careful attention by scientists, health care professionals, government officials, and the public. The establishment of the ELSI (ethical, legal, and social implications) programs at the National Human Genome Research Institute (NHGRI) and the Department of Energy (DOE) was thought to be vital to the success of the HGP in the United States. It also provided a novel approach to the simultaneous study of ethical, legal, and social issues and basic scientific issues. Eric Juengst, the first director of the ELSI program, described its origins in a previous issue of the
Cancer; Confidentiality; Counseling; Cystic Fibrosis; Consent; DNA; DNA Data Banks; Data Banks; Discrimination; Education; Employment; Evaluation; Federal Government; Genetic Counseling; Genetic Predisposition; Genetic Research; Genome; Genome Mapping; Goals; Government; Government Financing; Genetic Screening; Health; Health Care; Health Insurance; HGP; Human Genome; Human Genome Project; Informed Consent; Insurance; Privacy; Program Descriptions; Research; Social Discrimination;
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