The Human Genome Diversity Project: Medical Benefits Versus Ethical Concerns
Wallace, Robert W.
Molecular Medicine Today. 1998 Feb; 4(2): 59-62.
By the year 2005 the entire human genome should have been sequenced and the genes identified. But the resulting genomic sequence, although a marvelous accomplishment, will be a composite of just a handful of individuals selected at random. The Human Genome Diversity Project was proposed as a means to overcome these limitations by obtaining genetic information from many diverse populations of the world. This would give medical geneticists a handle on the variations in susceptibility to disease among different populations, as well as being of anthropological value. But would such a project risk exploiting the indigenous populations involved?
Anthropology; Consent; Developing Countries; Disease; DNA; DNA Data Banks; Data Banks; Ethical Review; Federal Government; Genes; Genetic Diversity; Genetic Information; Genetic Research; Genetics; Genome; Genome Mapping; Government; Government Financing; Guidelines; Health; Human Genome; Human Genome Diversity Project; Indigenous Populations; Industry; Informed Consent; International Aspects; Patents; Population Genetics; Privacy; Public Policy; Research; Review; Risk; Science; Tissue Banks;
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