Making Responsible Decisions: An Interpretive Ethic for Genetic Decisionmaking
White, Mary Terrell
Hastings Center Report. 1999 Jan-Feb; 29(1): 14-21.
It is widely thought that genetic counselors should work with parents "nondirectively": they should keep parents informed and support their decisions. But this view misconceives human decisionmaking by failing to recognize that value choices are constructed within and constrained by a community. Acknowledging that decisions involve interaction with and responsibility toward others leads to a "dialogical" model of counseling, in which genetic counselors may question and quide parents' decisions.
Abortion; Accountability; Autonomy; Communication; Counseling; Cultural Pluralism; Decision Making; Diagnosis; Directive Counseling; Eugenics; Genetic Counseling; Genetic Disorders; Genetic Information; Goals; Genetic Screening; Health; Health Personnel; Moral Obligations; Normality; Parents; Prenatal Diagnosis; Professional Patient Relationship; Reproduction; Selective Abortion; Social Interaction; Values;
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White, Mary Terrell (1998-01)Nondirective genetic counseling developed as a means of promoting informed and independent decision-making. To the extent that it minimizes risks of coercion, this counseling approach effectively respects client autonomy. ...