Genotyping in Clinical Trials: Towards a Principle of Informed Request
Journal of Medicine and Philosophy. 1998 Jun; 23(3): 288-296.
This paper reviews the usefulness of bioethical instruments such as the informed consent principle to handle ethical and political challenges of clinical trials in genotyping and DNA-banking and discusses an informed request model as well as other contractual relations between research institutions, patients, and their families.
Autonomy; Clinical Trials; Confidentiality; Consent Forms; Contracts; Consent; DNA; DNA Fingerprinting; Discrimination; Epidemiology; Family Members; Forms; Genetic Information; Genetic Materials; Genetic Predisposition; Genetic Research; Human Experimentation; Informed Consent; Paternalism; Patients; Pedigree; Privacy; Property Rights; Property; Research; Research Subjects; Rights; Social Discrimination; Standards; Tissue Banks;
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