Nondirectiveness in Prenatal Genetics: Patients Read Between the Lines
Nursing Ethics. 1999 Mar; 6(2): 126-136.
For decades questionnaires have been used to measure the cognitive and psychological effects of prenatal genetic testing, but little is known about why some women undergo testing and others decline. Research indicates that many factors influence decision making, including values and beliefs. What is often denied rather than recognized is that the professional and personal values and beliefs held by the health care provider influence the patient's decision. It is assumed that, if genetic services are delivered in a nondirective manner, patients will not be affected by the provider's personal and professional standpoint. The qualitative research data reported here challenge this assumption. Getting to know patients' moral understanding and patterns of ethical reasoning by listening to their personal stories is recommended as a better way for nurses to help patients to make informed and autonomous decisions about prenatal genetic screening or diagnostic tests.
Abortion; Age Factors; Attitudes; Communication; Congenital Disorders; Counseling; Decision Making; Diagnosis; Directive Counseling; Disclosure; Ethics; Fathers; Females; Genetic Counseling; Genetic Information; Genetic Services; Genetic Testing; Genetics; Genetic Screening; Health; Health Care; Health Personnel; Life; Males; Marital Relationship; Married Persons; Moral Obligations; Narrative Ethics; Nurses; Nursing Research; Patients; Pregnant Women; Prenatal Diagnosis; Professional Patient Relationship; Qualitative Research; Quality of Life; Questionnaires; Research; Right Not to Know; Selective Abortion; Suffering; Uncertainty; Values;
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