Dialysis Patients' Preferences for Family-Based Advance Care Planning
Hines, Stephen C.
Glover, Jacqueline J.
Holley, Jean L.
Babrow, Austin S.
Badzek, Laurie A.
Moss, Alvin H.
Annals of Internal Medicine. 1999 May 18; 130(10): 825-828.
BACKGROUND: Most patients do not participate in advance care planning with physicians. OBJECTIVE: To examine patients' preferences for involving their physicians and families in advance care planning. DESIGN: Face-to-face interviews with randomly selected patients. SETTING: Community-based dialysis units in one rural and one urban region. PARTICIPANTS: 400 hemodialysis patients. MEASUREMENTS: Questions about whom patients involve in advance care planning, whom patients would like to include in this planning, and patients' reactions to state legislation on surrogate decision makers in end-of-life care. RESULTS: Patients more frequently discussed preferences for end-of-life care with family members than with physicians (50% compared with 6%; P less than 0.001). More patients wanted to include family members in future discussions of advance care planning than wanted to include physicians (91% compared with 36%; P less than 0.001). Patients were most comfortable with legislation that granted their family end-of-life decision-making authority in the event of their own incapacity (P less than 0.001). CONCLUSION: Most patients want to include their families more than their physicians in advance care planning.
Advance Care Planning; Advance Directives; Attitudes; Chronically Ill; Communication; Consent; Decision Making; Family Members; Government; Hemodialysis; Interviews; Legal Aspects; Legislation; Life; Patients; Physician Patient Relationship; Physician's Role; Physicians; Renal Dialysis; State Government; Survey; Terminal Care; Third Party Consent; Trust;
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