Quality End-of-Life Care: Patients' Perspectives
Singer, Peter A.
Martin, Douglas K.
JAMA. 1999 Jan 13; 281(2): 163-168.
CONTEXT: Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients. OBJECTIVE: To identify and describe elements of quality end-of-life care from the patient's perspective. DESIGN: Qualitative study using in-depth, open-ended, face-to-face interviews and content analysis. SETTING: Toronto, Ontario. PARTICIPANTS: A total of 126 participants from 3 patient groups: dialysis patients (n = 48), people with human immunodeficiency virus infection (n = 40), and residents of a long-term care facility (n = 38). OUTCOME MEASURES: Participants' views on end-of-life issues. RESULTS: Participants identified 5 domains of quality end-of-life care: receiving adequate pain and symptom management, avoiding inappropriate prolongation of dying, achieving a sense of control, relieving burden, and strengthening relationships with loved ones. CONCLUSION: These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end-of-life care.
Adults; Advance Care Planning; Advance Directives; Aged; Attitudes; Chronically Ill; Decision Making; Family Relationship; Health; Health Care; Interviews; Life; Long-Term Care; Organizations; Pain; Palliative Care; Patient Participation; Patient Satisfaction; Patients; Qualitative Research; Quality of Health Care; Quality of Life; Renal Dialysis; Research; Suffering; Survey; Terminal Care; Terminally Ill;
Showing items related by title, author, creator and subject.