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Meacham, Meredith C; Starks, Helene; Burke, Wylie; Edwards, Kelly (2010-09)Genetic research can produce information that is beyond the aims of the research study yet may be of clinical or personal interest to study participants. We conducted semi-structured interviews with 44 researchers who were ...
Illes, J.; Kirschen, M. P.; Edwards, E.; Bandettini, P. A. (Peter A.); Cho, M. K.; Ford, P. J.; Glover, G. H.; Kulynych, J.; Macklin, R.; Michael, D. B.; Wolf, S. M.; Grabowski, T.; Seto, B. (2008-01-29)
Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts Unknown author (Presidential Commission for the Study of Bioethical Issues, 2013-12)Anticipate and Communicate is the Bioethics Commission’s sixth major report. In this report the Bioethics Commission offers specific recommendations for the management of incidental and secondary findings in clinical, ...