Ventilator Dependency: Decision-Making, Daily Functioning and Quality of Life for Patients With Duchenne Muscular Dystrophy
Miller, Jessica Robins
Colbert, Agatha P.
Osberg, J. Scott
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY 1990 December; 32(12): 1078-1086
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Penner, Leigh; Cantor, Rabbi Mollie; Siegel, Linda (2010-07)The death of a child is an uncommon occurrence and can be difficult for families to accept. Attempts by the healthcare team to discuss end-of-life issues can be so upsetting to families that they refuse to participate in ...