PUBLIC AFFAIRS QUARTERLY 1992 April; 6(2): 227-243
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Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research Ponder, M.; Statham, H.; Hallowell, N.; Moon, J.A.; Richards, M.; Raymond, F.L. (2008-09)Objectives: To study the consent process experienced by participants who are enrolled in a molecular genetic research study that aims to find new genetic mutations responsible for an apparently inherited disorder. Design: ...