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Schaffer, Rebecca; Henderson, Gail E; Churchill, Larry R.; King, Nancy M.P.; Rothschild, Barbra B.; Lohser, Sara; Davis, Arlene M. (2009-09)PARENTS OF SERIOUSLY ILL CHILDREN FACE difficult decisions when standard therapies are limited or ineffective. In their search for information, they may turn to websites created by other parents facing similar experiences. ...
King, Nancy M.P.; Henderson, Gail E.; Churchill, Larry R.; Davis, Arlene M.; Hull, Sara Chandros; Nelson, Daniel K.; Parham- Vetter, P. Christy; Rothschild, Barbra Bluestone; Easter, Michele M.; Wilfond, Benjamin S. (2005-01)