Patient or Customer?
Parker, Judith M.
Collegian 1999 January; 6(1): 16-23
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Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs). Povey, Sue; Al Aqeel, Aida I.; Cambon-Thomsen, Anne; Dalgleish, Raymond; Den Dunnen, Johan T.; Firth, Helen V.; Greenblatt, Marc S.; Barash, Carol Isaacson; Parker, Michael; Patrinos, George P.; Savige, Judith; Sobrido, Maria-Jesus; Winship, Ingrid; Cotton, Ric (2010-11)More than 1,000 Web-based locus-specific variation databases (LSDBs) are listed on the Website of the Human Genetic Variation Society (HGVS). These individual efforts, which often relate phenotype to genotype, are a valuable ...